I felt like a woman: A phenomenological qualitative study of disease-related experiences in Mayer-Rokitansky-Küster-Hauser syndrome (MRKH syndrome)

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dc.authorid0000-0003-1406-5123
dc.contributor.authorGuner, Perihan
dc.contributor.authorUlukaya, Tugba
dc.contributor.authorSaribudak, Tugba Pehlivan
dc.date.accessioned2026-04-04T18:55:57Z
dc.date.available2026-04-04T18:55:57Z
dc.date.issued2025
dc.departmentİstanbul Bilgi Üniversitesi
dc.description.abstractThis study aimed to examine the psychosocial problems and their effects experienced by individuals diagnosed with Mayer-Rokitansky-K & uuml;ster-Hauser syndrome (MRKH syndrome) who had undergone surgical operations. Ten patients who had undergone a McIndoe operation after a MRKH syndrome diagnosis were recruited with a convenience sample. Data collection was conducted at the Department of Obstetrics and Gynecology of a university hospital in T & uuml;rkiye. This study produced four main themes: (1) Emotional Turmoil Upon Diagnosis, (2) Challenges to Sexual Identity and Intimate Relationships, (3) The Profound Impact of Infertility, and (4) Navigating the Complexities of Surgical Treatment. This study revealed that MRKH syndrome individuals experienced psychological reactions such as shock, resentment, anger, and sadness throughout their journey with the disease, including both before and after undergoing surgical operations. The study sheds light on the psychological needs of individuals (particularly during the initial diagnosis and postoperative period), offering important implications for nurses caring for such individuals.
dc.identifier.doi10.1177/13591053241305941
dc.identifier.doi10.1177/13591053241305941
dc.identifier.endpage3152
dc.identifier.issn1359-1053
dc.identifier.issn1461-7277
dc.identifier.issue11
dc.identifier.pmid40955819
dc.identifier.scopus2-s2.0-85214405136
dc.identifier.scopusqualityQ1
dc.identifier.startpage3137
dc.identifier.urihttps://doi.org/10.1177/13591053241305941
dc.identifier.urihttps://hdl.handle.net/11411/10633
dc.identifier.volume30
dc.identifier.wosWOS:001386247200001
dc.identifier.wosqualityQ2
dc.indekslendigikaynakWeb of Science
dc.indekslendigikaynakScopus
dc.indekslendigikaynakPubMed
dc.language.isoen
dc.publisherSage Publications Ltd
dc.relation.ispartofJournal of Health Psychology
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanı
dc.rightsinfo:eu-repo/semantics/closedAccess
dc.snmzKA_WoS_20260402
dc.snmzKA_Scopus_20260402
dc.subjectMayer-Rokitansky-K & Uuml;Ster-Hauser Syndrome
dc.subjectNursing
dc.subjectPost-Surgery
dc.subjectPsychosocial
dc.subjectQualitative
dc.titleI felt like a woman: A phenomenological qualitative study of disease-related experiences in Mayer-Rokitansky-Küster-Hauser syndrome (MRKH syndrome)
dc.typeArticle

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